Frequently Asked Questions

What is a hackathon?

A weekend of intense collaboration where participants solve pressing problems. Teams organically form around a selected core issue and use their diverse backgrounds to develop a solution.

What is hemophilia?

Hemophilia is a genetic or acquired bleeding disorder where a defect or lack of clotting factor results in the inability to form a proper blood clot. It is characterized by extended bleeding after injury, surgery, trauma, or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Severity, treatments, and physical and emotional impact vary greatly across the hemophilia community. Our goal is to identify solutions to the issues facing people with hemophilia. Learn more about hemophilia here.

What will we do each day?

Day 1–Meet your fellow hackers and learn how to hack.

Day 2–Learn about the issues, join a team, and hack away!

Day 3–Pitch your solutions and find out which team's proposed solution won.

Who should apply?

Anyone with a can-do attitude can apply! Members of the bleeding disorder community, clinicians, developers, designers, engineers, entrepreneurs…anyone who can bring their special talents, insights, and enthusiasm to bear on the issues facing those living with hemophilia.

I have a bleeding disorder, but not hemophilia. Should I still apply?

Absolutely! While the focus of the hackathon will be solving problems faced by the hemophilia community, unique insights and experiences from people with other bleeding disorders or rare diseases are extremely valuable. If you feel that you will be an enthusiastic participant and provide a unique perspective, we want you with us!

How can I apply?

Just fill out this short form! The form will take about 10 minutes to complete, and all applications will be reviewed and attendees selected based on background, experience, and perspective.

Why do you need this information from me?

The questions in the form are designed to help us evaluate the unique background, skills, and experiences that you can bring to the hack. Your information will not be shared with any third party and will not be used for any other purpose beyond the selection process.

How many people will be selected?

Approximately 100 applicants from a variety of backgrounds will be selected to attend.

How will I know if I have been selected to attend?

You will be notified of your status within a few weeks of applying.

What are the prizes for a winning pitch?

First Place: $2,500

Second Place: $1,000

Third Place: $500

If you are a physician, you are not eligible to receive prize money, but your team will still be eligible.

How will this lead to making a difference?

The ultimate goal of the hackathon is to identify and implement real-world solutions that will improve the lives of people living with hemophilia. While the hackathon will bring about these ideas, this is just the beginning. CSL Behring, NHF, MIT Hacking Medicine, and additional attendees will be looking for opportunities to put these ideas into practice.

I want to attend but I'm not sure I can afford the trip. What can I do?

If you are a patient or caregiver from outside the Boston area, we want to help you get here! Just indicate in your application that you are not from the Boston/Cambridge area and will need assistance with accommodations.

All participants who are not patients or caregivers will be responsible for their own travel and accommodations.

Still have questions? Contact us!

We are happy to answer any questions you may have. Please email us at Questions@HackingHemophilia.com.

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